In Their Own Voices; Living with Hidradenitis Suppurativa: A Qualitative Study

DURGU N., Ozan E., Gencoglan G.

Advances in Skin and Wound Care, cilt.36, sa.12, ss.1-6, 2023 (SCI-Expanded) identifier identifier identifier

  • Yayın Türü: Makale / Tam Makale
  • Cilt numarası: 36 Sayı: 12
  • Basım Tarihi: 2023
  • Doi Numarası: 10.1097/asw.0000000000000067
  • Dergi Adı: Advances in Skin and Wound Care
  • Derginin Tarandığı İndeksler: Science Citation Index Expanded (SCI-EXPANDED), Social Sciences Citation Index (SSCI), Scopus, PASCAL, CINAHL, EMBASE, MEDLINE
  • Sayfa Sayıları: ss.1-6
  • Anahtar Kelimeler: hidradenitis suppurativa, lived experience, psychosocial effect, qualitative study, quality of life, symptoms
  • Manisa Celal Bayar Üniversitesi Adresli: Evet

Özet

OBJECTIVE: To provide a deeper assessment of the lived experience of patients with hidradenitis suppurativa, a chronic inflammatory disorder characterized by recurrent abscess, sinuses, and scars. METHODS This study used a phenomenologic approach. Researchers recruited 10 participants via purposive sampling. Data were collected via semistructured, in-depth, face-to-face interviews, and interpretative phenomenologic analysis was performed. RESULTS Data analysis uncovered two primary themes among participants' interview responses: "unending symptoms"and "life becoming hard."CONCLUSIONS The symptoms of hidradenitis suppurativa negatively affect individuals' family, professional, and daily lives, and patients may benefit from psychiatric intervention.