In Their Own Voices; Living with Hidradenitis Suppurativa: A Qualitative Study

DURGU N., Ozan E., Gencoglan G.

Advances in Skin and Wound Care, vol.36, no.12, pp.1-6, 2023 (SCI-Expanded, SSCI, Scopus) identifier identifier identifier

  • Publication Type: Article / Article
  • Volume: 36 Issue: 12
  • Publication Date: 2023
  • Doi Number: 10.1097/asw.0000000000000067
  • Journal Name: Advances in Skin and Wound Care
  • Journal Indexes: Science Citation Index Expanded (SCI-EXPANDED), Social Sciences Citation Index (SSCI), Scopus, PASCAL, CINAHL, EMBASE, MEDLINE
  • Page Numbers: pp.1-6
  • Keywords: hidradenitis suppurativa, lived experience, psychosocial effect, qualitative study, quality of life, symptoms
  • Manisa Celal Bayar University Affiliated: Yes

Abstract

OBJECTIVE: To provide a deeper assessment of the lived experience of patients with hidradenitis suppurativa, a chronic inflammatory disorder characterized by recurrent abscess, sinuses, and scars. METHODS This study used a phenomenologic approach. Researchers recruited 10 participants via purposive sampling. Data were collected via semistructured, in-depth, face-to-face interviews, and interpretative phenomenologic analysis was performed. RESULTS Data analysis uncovered two primary themes among participants' interview responses: "unending symptoms"and "life becoming hard."CONCLUSIONS The symptoms of hidradenitis suppurativa negatively affect individuals' family, professional, and daily lives, and patients may benefit from psychiatric intervention.